Today’s post is part two of two – you can find the first post here.
Switching to ME Clinic Home Visits
At this point (towards the middle/end of 2015) they decided to switch me to home visits and somewhere down the line there was mixed communication. I was given the impression that it would be more of a living assessment and they would give suggestions on what I could change around the house to make daily life easier, but that wasn’t the case at all! I actually cancelled my home visit weeks before, as I was due to be moving house shortly and didn’t want to waste their time assessing somewhere I would no longer live. Once they realised, they told me that wasn’t what the visits would entail and we arranged for my first home visit once I was settled into my new house.
Home Visit 1
Two women come for the home visits – a Senior OT and a nurse. They both have very specialised training in M.E. I’d met them both before, as the clinic actually put on open days once or twice a year, aimed at helping family, friends and carers understand the condition and manage it better at home (really useful!) The first session ran over to 1.5 hours and was exhausting, but so worth it as it was very enlightening. They took me back to the very beginning of my ill-health (aged 15) and helped identify precipitating factors such as various illnesses, operations, traumas and stress. One thing to note – they really don’t mind you being in your PJ’s with messy hair… they’ve seen it all before!